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Resources to help professionals work with people who have a rare disease

Online courses, guidelines and other resources to help health professionals manage rare diseases.
Who is it for?
Professionals
What is it about?
Health topics that matter to us, Understanding intellectual disability
Who made it?
Rare Awareness Rare Education (RARE) Portal
When was it made?
It was created
3 months ago
. It was shared here .
Why do we trust it?

Because it was made to help, not for profit.

Learn more about why we trust it and how to check other information.

Share

Health workers may need support when treating people with rare diseases.

This website has resource for health workers. You can find links to:

  • guidelines about health care
  • e-learning courses
  • case studies for GPs
  • a tool that translates medical words into languages
  • a tool to help GPs give genetic care to patients and families
  • an online library of clear, trusted information about rare diseases
  • support resources.

There are also resources for:

  • First Nations people
  • culturally and linguistically diverse (CALD) people
  • people living in regional, rural and remote areas.

We trust this resource

We trust this resource because it is:

  • Made to help, not for profit
  • Made by people who know a lot about the topic
  • Made in Australia

We've checked this resource, and you can follow our guide to know if health information is true and right for you.

This resource was made by

Rare Awareness Rare Education (RARE) Portal

The Rare Awareness Rare Education (RARE) Portal is Australia’s growing national resource for rare diseases. It has an online library of current, reliable information about rare diseases.