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Rare disease resources for First Nations people

A website with links to support First Nations people who have rare diseases.
Who is it for?
First Nations
What is it about?
Health topics that matter to us
Who made it?
Rare Awareness Rare Education (RARE) Portal
When was it made?
It was created
3 months ago
. It was shared here .
Why do we trust it?

Because it was made to help, not for profit.

Learn more about why we trust it and how to check other information.

Share

This website has helpful links for people living with a .

The information can help you:

  • learn more about rare diseases
  • find support and services
  • know where to start if you need help.

You can find information about topics like:

  • getting pregnant and having children
  • moving to a new health service
  • health care for people who are dying
  • the
  • speaking up for yourself
  • government services that can help
  • support for carers
  • privacy.

We trust this resource

We trust this resource because it is:

  • Made to help, not for profit
  • Made by people who know a lot about the topic
  • Made in Australia

We've checked this resource, and you can follow our guide to know if health information is true and right for you.

This resource was made by

Rare Awareness Rare Education (RARE) Portal

The Rare Awareness Rare Education (RARE) Portal is Australia’s growing national resource for rare diseases. It has an online library of current, reliable information about rare diseases.