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Mental health support for people with a rare disease

This website has fact sheets about rare disease and mental health in Easy Read and plain language. It has resources for people with a rare disease, their family members and health professionals.
Who is it for?
People with intellectual disability, Family and carers, Professionals
What is it about?
Mental health, For professionals
Who made it?
Rare Awareness Rare Education (RARE) Portal
When was it made?
It was created
3 months ago
. It was shared here .
Formats available:
Easy Read
Why do we trust it?

Because it was made to help, not for profit.

Learn more about why we trust it and how to check other information.

Share

Living with a can be hard. It can also be hard for family members and carers. People may feel worried, stressed, lonely, sad, or unsure about the future. Looking after someone with a rare disease can be a lot of work.

People with a rare disease and their family and carers may need support for .

This website has information about mental health services and support available in Australia.

The website has: 

  • fact sheets in plain language and Easy Read
  • information about Mental Health First Aid
  • links to mental health services
  • links to support for family and carers
  • resources for health professionals.

We trust this resource

We trust this resource because it is:

  • Made to help, not for profit
  • Made by people who know a lot about the topic
  • Made in Australia

We've checked this resource, and you can follow our guide to know if health information is true and right for you.

This resource was made by

Rare Awareness Rare Education (RARE) Portal

The Rare Awareness Rare Education (RARE) Portal is Australia’s growing national resource for rare diseases. It has an online library of current, reliable information about rare diseases.